Union Calendar No. 137
116th CONGRESS 1st Session |
[Report No. 116–177]
To reauthorize certain provisions of the Public Health Service Act relating to autism, and for other purposes.
February 7, 2019
Mr. Smith of New Jersey (for himself and Mr. Michael F. Doyle of Pennsylvania) introduced the following bill; which was referred to the Committee on Energy and Commerce
July 23, 2019
Additional sponsors: Mr. Fitzpatrick, Mr. Brendan F. Boyle of Pennsylvania, Mr. Sean Patrick Maloney of New York, Mr. Peterson, Mr. San Nicolas, Mr. Payne, Mr. Serrano, Mr. Deutch, Mr. Carson of Indiana, Mr. King of New York, Mr. Gottheimer, Mr. Lipinski, Ms. Norton, Mr. Yarmuth, Mr. McGovern, Mr. Hastings, Mr. Brindisi, Mr. Moulton, Ms. Slotkin, Mr. Meeks, Mr. Kim, Mr. Welch, Mrs. Walorski, Mr. Schiff, Ms. Lofgren, Mr. Ryan, Ms. Matsui, Ms. Waters, Mr. Kennedy, Ms. Kuster of New Hampshire, Mrs. Davis of California, Mr. Rose of New York, Mr. Pocan, Mr. Ruppersberger, Mrs. Hayes, Mr. Marchant, Mr. Stivers, Mr. Kelly of Pennsylvania, Mr. Stauber, Mr. Sires, Ms. Spanberger, Mr. Young, Mr. Cox of California, Mr. García of Illinois, Mr. Golden, Mr. Reschenthaler, Mr. Raskin, Ms. Brownley of California, Ms. Sherrill, Ms. Wild, Ms. Judy Chu of California, Mr. David P. Roe of Tennessee, Mr. Brown of Maryland, Mr. McKinley, Mr. Cole, Mr. Levin of Michigan, Mr. Clay, Ms. Mucarsel-Powell, Mr. Courtney, Mr. Lamborn, Ms. Haaland, Mr. Correa, Mr. Cooper, Ms. Clarke of New York, Mrs. Rodgers of Washington, Mr. DeFazio, Mr. Grijalva, Mrs. Watson Coleman, Ms. Castor of Florida, Mr. Blumenauer, Mr. Connolly, Ms. Scanlon, Mr. Morelle, Miss Rice of New York, Ms. Johnson of Texas, Ms. Ocasio-Cortez, Mr. Stewart, Mr. Horsford, Mr. Bost, Ms. Stefanik, Mr. Costa, Ms. Pingree, Mr. Malinowski, Mrs. Beatty, Mr. Swalwell of California, Mrs. Lee of Nevada, Mrs. Axne, Mr. Lamb, Mr. Thompson of Mississippi, Mr. Loebsack, Ms. DeLauro, Mr. Rodney Davis of Illinois, Mr. Gallego, Mr. Shimkus, Ms. Pressley, Ms. Titus, Mr. Joyce of Ohio, Mr. Chabot, Miss González-Colón of Puerto Rico, Mr. Larson of Connecticut, Mr. Joyce of Pennsylvania, Ms. Jackson Lee, Ms. Craig, Mr. Hurd of Texas, Ms. Finkenauer, Ms. Clark of Massachusetts, Mrs. Dingell, Mrs. Kirkpatrick, Mr. Luján, Ms. Blunt Rochester, Mr. Butterfield, Mrs. Miller, Mr. Heck, Mr. Harder of California, Mr. Rouda, Mrs. Lawrence, Mr. Green of Texas, Mr. Collins of New York, Mr. Schweikert, Mr. Gianforte, Mr. Engel, Mr. Cárdenas, Mr. Trone, Mr. Posey, Ms. Lee of California, Mrs. Trahan, Mr. Rush, Mr. Latta, Mr. Upton, Mr. McEachin, Mr. Soto, Mr. Suozzi, Mr. Carter of Georgia, Mr. Spano, Mr. Tonko, Mr. Emmer, Mr. Lawson of Florida, Mr. Cisneros, Mr. Carbajal, Mr. O'Halleran, Ms. Omar, Mrs. Brooks of Indiana, Mr. Steube, Mr. Ted Lieu of California, Ms. Roybal-Allard, Mr. Phillips, Ms. Fudge, Ms. McCollum, Mr. Guthrie, Mr. Pappas, Mr. Thompson of Pennsylvania, Ms. Underwood, Mr. Huffman, Ms. Kaptur, Mr. Marshall, Mr. Barr, Ms. Wexton, Ms. Wasserman Schultz, Ms. Schakowsky, Mr. Walden, Mr. Johnson of South Dakota, Mr. Himes, Mrs. Lowey, Mr. Zeldin, Mr. Van Drew, Mr. Neguse, Mr. Hagedorn, Ms. Herrera Beutler, Mr. Quigley, Mr. Sablan, Mr. Gonzalez of Ohio, and Ms. Kendra S. Horn of Oklahoma
July 23, 2019
Reported with amendments, committed to the Committee of the Whole House on the State of the Union, and ordered to be printed
[Strike out all after the enacting clause and insert the part printed in italic]
[For text of introduced bill, see copy of bill as introduced on February 7, 2019]
To reauthorize certain provisions of the Public Health Service Act relating to autism, and for other purposes.
Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled,
This Act may be cited as the “Autism Collaboration, Accountability, Research, Education, and Support Act of 2019” or the “Autism CARES Act of 2019”.
SEC. 2. Expansion, intensification, and coordination of activities of the NIH with respect to research on autism spectrum disorder.
Section 409C of the Public Health Service Act (42 U.S.C. 284g) is amended—
(1) in subsection (a)(1)—
(A) in the first sentence, by striking “and toxicology” and inserting “toxicology, and interventions to maximize outcomes for individuals with autism spectrum disorder”; and
(B) by striking the second sentence and inserting the following: “Such research shall investigate the causes (including possible environmental causes), diagnosis or ruling out, early and ongoing detection, prevention, services across the lifespan, supports, intervention, and treatment of autism spectrum disorder, including dissemination and implementation of clinical care, supports, interventions, and treatments.”;
(2) in subsection (b)—
(A) in paragraph (2)—
(B) in paragraph (3), by adding at the end the following:
“(D) REDUCING DISPARITIES.—The Director may consider, as appropriate, the extent to which a center can demonstrate availability and access to clinical services for youth and adults from diverse racial, ethnic, geographic, or linguistic backgrounds in decisions about awarding grants to applicants which meet the scientific criteria for funding under this section.”.
SEC. 3. Programs relating to autism.
(a) Developmental disabilities surveillance and research program.—Section 399AA of the Public Health Service Act (42 U.S.C. 280i) is amended—
(1) in subsection (a)(1), by striking “adults on autism spectrum disorder” and inserting “adults with autism spectrum disorder”;
(2) in subsection (a)(2)—
(3) in subsection (a)(3), by striking “a university, or any other educational institution” and inserting “a university, any other educational institution, an Indian tribe, or a tribal organization”;
(4) in subsection (b)(2)(A), by striking “relevant State and local public health officials, private sector developmental disability researchers, and advocates for individuals with developmental disabilities” and inserting “State, local, and Tribal public health officials, private sector developmental disability researchers, advocates for individuals with autism spectrum disorder, and advocates for individuals with other developmental disabilities”;
(b) Autism education, early detection, and intervention.—Section 399BB of the Public Health Service Act (42 U.S.C. 280i–1) is amended—
(1) in subsection (a)(1)—
(3) in subsection (c)—
(A) in paragraph (1), in the matter preceding subparagraph (A), by striking “the needs of individuals with autism spectrum disorder or other developmental disabilities and their families” and inserting “the needs of individuals with autism spectrum disorder and other developmental disabilities across their lifespan and the needs of their families”; and
(B) in paragraph (2)—
(i) in subparagraph (A)(ii), by striking “caregivers of individuals with an autism spectrum disorder” and inserting “caregivers of individuals with autism spectrum disorder or other developmental disabilities”;
(4) in subsection (e)—
(A) in paragraph (1)—
(C) by inserting after paragraph (1) the following:
“(2) DEVELOPMENTAL-BEHAVIORAL PEDIATRICIAN TRAINING PROGRAMS.—
“(A) IN GENERAL.—In making awards under this subsection, the Secretary may prioritize awards to applicants that are developmental-behavioral pediatrician training programs located in rural or underserved areas.
(c) Interagency autism coordinating committee.—Section 399CC of the Public Health Service Act (42 U.S.C. 280i–2) is amended—
(1) in subsection (b)—
(2) in subsection (c)—
(A) in paragraph (1)(D), by inserting “, the Department of Labor, the Department of Justice, the Department of Veterans Affairs, the Department of Housing and Urban Development,” after “Department of Education”;
(d) Reports to Congress.—Section 399DD of the Public Health Service Act (42 U.S.C. 280i–3) is amended—
(1) in subsection (a)—
(A) in paragraph (1), by striking “Autism CARES Act of 2014” and inserting “Autism CARES Act of 2019”; and
(2) in subsection (b)—
(A) in the heading, by striking “young adults and transitioning youth” and inserting “the health and well-Being of individuals with autism spectrum disorder across their lifespan”;
(B) by amending paragraph (1) to read as follows:
“(1) IN GENERAL.—Not later than 2 years after the date of enactment of the Autism CARES Act of 2019, the Secretary shall prepare and submit, to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives, a report concerning the health and well-being of individuals with autism spectrum disorder.”; and
(C) in paragraph (2)—
(ii) in subparagraph (B), by striking “young adults” and all that follows through the semicolon and inserting “the health and well-being of individuals with autism spectrum disorder, including an identification of existing Federal laws, regulations, policies, research, and programs;”; and
(iii) by amending subparagraphs (C), (D), and (E) to read as follows:
“(C) recommendations on establishing best practices guidelines to ensure interdisciplinary coordination between all relevant service providers receiving Federal funding;
“(D) comprehensive approaches to improving health outcomes and well-being for individuals with autism spectrum disorder, including—
(e) Authorization of appropriations.—Section 399EE of the Public Health Service Act (42 U.S.C. 280i–4) is amended—
(1) in subsection (a), by striking “$22,000,000 for each of fiscal years 2015 through 2019” and inserting “$23,100,000 for each of fiscal years 2020 through 2024”;
Amend the title so as to read: “A bill to amend the Public Health Service Act to enhance activities of the National Institutes of Health with respect to research on autism spectrum disorder and enhance programs relating to autism, and for other purposes.”.
Union Calendar No. 137 | |||||
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[Report No. 116–177] | |||||
A BILL | |||||
To reauthorize certain provisions of the Public Health Service Act relating to autism, and for
other purposes. | |||||
July 23, 2019 | |||||
Reported with amendments, committed to the Committee of the Whole House on the State of the Union,
and ordered to be printed |