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Senate Bill 4249
116th Congress(2019-2020)
A bill to ensure the protection of human genetic information collected as a result of diagnostic testing for COVID-19.
Introduced
Introduced
Introduced in Senate on Jul 21, 2020
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Introduced in Senate 
Jul 21, 2020
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Introduced in Senate(Jul 21, 2020)
Jul 21, 2020
Not Scanned for Linkage
About Linkage
Multiple bills can contain the same text. This could be an identical bill in the opposite chamber or a smaller bill with a section embedded in a larger bill.
Bill Sponsor regularly scans bill texts to find sections that are contained in other bill texts. When a matching section is found, the bills containing that section can be viewed by clicking "View Bills" within the bill text section.
Bill Sponsor is currently only finding exact word-for-word section matches. In a future release, partial matches will be included.
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S. 4249 (Introduced-in-Senate)


116th CONGRESS
2d Session
S. 4249


To ensure the protection of human genetic information collected as a result of diagnostic testing for COVID–19.

IN THE SENATE OF THE UNITED STATES

July 21, 2020

Mr. Tillis introduced the following bill; which was read twice and referred to the Committee on Health, Education, Labor, and Pensions

A BILL

To ensure the protection of human genetic information collected as a result of diagnostic testing for COVID–19.

Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled,

SECTION 1. Protection of human genetic information.

(a) In general.—Notwithstanding any other provision of law, the Secretary of Health and Human Services shall ensure that no person may collect, store, analyze, disseminate, or otherwise make use of, or benefit from, any human genetic information collected as a result of diagnostic testing for COVID–19, for any incidental use, or any reason other than such diagnostic or serologic testing, except with the express, written, informed consent of the individual being tested.

(b) Enforcement.—Any person who violates subsection (a) shall be subject to a civil monetary penalty of not more than $100 for each such violation.

(c) Definitions.—In this section—

(1) the term “genetic information” has the meaning given such term in section 160.103 of title 45, Code of Federal Regulations (or any successor regulations); and

(2) the term “incidental” means any action taken by any person, directly or indirectly, to obtain genetic information from an individual, for any purpose, other than the purpose specifically authorized by the living individual from whom the specimen has its biological origin or another designated individual if the individual is a minor or is incapacitated, or if the individual is deceased, the individual’s next of kin.