House Bill 482
117th Congress(2021-2022)
Newborn Screening Saves Lives Reauthorization Act of 2021
Active
Active
Passed House on Jun 23, 2021
Overview
Text
Introduced
Jan 25, 2021
Latest Action
Jun 24, 2021
Origin Chamber
House
Type
Bill
Bill
The primary form of legislative measure used to propose law. Depending on the chamber of origin, bills begin with a designation of either H.R. or S. Joint resolution is another form of legislative measure used to propose law.
Bill Number
482
Congress
117
Policy Area
Health
Health
Primary focus of measure is science or practice of the diagnosis, treatment, and prevention of disease; health services administration and funding, including such programs as Medicare and Medicaid; health personnel and medical education; drug use and safety; health care coverage and insurance; health facilities. Measures concerning controlled substances and drug trafficking may fall under Crime and Law Enforcement policy area.
Sponsorship by Party
California
Kentucky
California
California
California
California
California
California
California
Colorado
Connecticut
Connecticut
District of Columbia
Illinois
Illinois
Kentucky
Maryland
Massachusetts
Nebraska
New Jersey
New Jersey
New York
North Carolina
North Carolina
North Carolina
Oklahoma
Pennsylvania
Pennsylvania
Tennessee
Washington
Washington
Washington
Passed
June 23, 2021
Type
Voice Vote
Voice Vote
A vote in which the presiding officer states the question, then asks those in favor and against to say "Yea" or "Nay," respectively, and announces the result according to his or her judgment. The names or numbers of senators voting on each side are not recorded.
Passed/agreed to in House: Pursuant to section 11 of H. Res. 486, and the motion offered by Mr. McGovern, the following bills passed under suspension of the rules: H.R. 482; H.R. 704; H.R. 961, as amended; H.R. 1314; H.R. 2571, as amended; H.R. 2679, as amended; H.R. 2694; H.R. 2922, as amended; H.R. 3182; H.R. 3239; H.R. 3241, as amended; H.R. 3723; H.R. 3752; H.R. 3841; S. 409; and S. 1340.(consideration: CR H3026-3052; text: CR H3026-3027)
Summary

Newborn Screening Saves Lives Reauthorization Act of 2021

This bill reauthorizes through FY2026 and revises several programs and activities relating to newborn screening for certain conditions and genetic, endocrine, and metabolic diseases.

Among its changes, the bill reauthorizes and makes mandatory

  • the Hunter Kelly Research Program at the National Institutes of Health, and
  • national surveillance activities conducted by the Centers for Disease Control and Prevention.

The bill also aligns statutory requirements for research on non-identified newborn blood spots with federal regulations governing research on human subjects. These blood spots are collected as part of newborn screening programs, and some states make them available for biomedical and public health research. Under current regulations, research on non-identified bio-specimens such as blood spots is not considered to be research on human subjects, to which additional protections apply.

Text (3)
June 24, 2021
June 23, 2021
January 25, 2021
Actions (11)
06/24/2021
Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
06/23/2021
Pursuant to section 11 of H. Res. 486, and the motion offered by Mr. McGovern, the following bills passed under suspension of the rules: H.R. 482; H.R. 704; H.R. 961, as amended; H.R. 1314; H.R. 2571, as amended; H.R. 2679, as amended; H.R. 2694; H.R. 2922, as amended; H.R. 3182; H.R. 3239; H.R. 3241, as amended; H.R. 3723; H.R. 3752; H.R. 3841; S. 409; and S. 1340. (consideration: CR H3026-3052; text: CR H3026-3027)
06/23/2021
Passed/agreed to in House: Pursuant to section 11 of H. Res. 486, and the motion offered by Mr. McGovern, the following bills passed under suspension of the rules: H.R. 482; H.R. 704; H.R. 961, as amended; H.R. 1314; H.R. 2571, as amended; H.R. 2679, as amended; H.R. 2694; H.R. 2922, as amended; H.R. 3182; H.R. 3239; H.R. 3241, as amended; H.R. 3723; H.R. 3752; H.R. 3841; S. 409; and S. 1340.(consideration: CR H3026-3052; text: CR H3026-3027)
06/23/2021
Pursuant to the provisions of H. Res. 486, proceedings on H.R. 482 are considered vacated.
06/22/2021
At the conclusion of debate, the Yeas and Nays were demanded and ordered. Pursuant to the provisions of clause 8, rule XX, the Chair announced that further proceedings on the motion would be postponed.
06/22/2021
DEBATE - The House proceeded with forty minutes of debate on H.R. 482.
06/22/2021
Considered under suspension of the rules. (consideration: CR H2940-2942; text: CR H2940-2941)
06/22/2021
Mr. Pallone moved to suspend the rules and pass the bill.
02/02/2021
Referred to the Subcommittee on Health.
01/25/2021
Referred to the House Committee on Energy and Commerce.
01/25/2021
Introduced in House
Public Record
Record Created
Jan 26, 2021 8:12:11 AM
Record Updated
Sep 22, 2021 5:59:04 PM