House Bill 5115
115th Congress(2017-2018)
RARE Act of 2018
Introduced
Introduced in House on Feb 27, 2018
Origin Chamber
House
Type
Bill
Bill
The primary form of legislative measure used to propose law. Depending on the chamber of origin, bills begin with a designation of either H.R. or S. Joint resolution is another form of legislative measure used to propose law.
Bill Number
5115
Congress
115
Policy Area
Health
Health
Primary focus of measure is science or practice of the diagnosis, treatment, and prevention of disease; health services administration and funding, including such programs as Medicare and Medicaid; health personnel and medical education; drug use and safety; health care coverage and insurance; health facilities. Measures concerning controlled substances and drug trafficking may fall under Crime and Law Enforcement policy area.
No House votes have been held for this bill.
Summary
Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018
This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health.
The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.
February 27, 2018
03/02/2018
Referred to the Subcommittee on Health.
02/27/2018
Referred to the House Committee on Energy and Commerce.
02/27/2018
Introduced in House
Public Record
Record Updated
Jan 11, 2023 1:40:29 PM