The bill establishes the 'INCLUDE Project' to promote comprehensive research, training, and investigation related to Down syndrome, focusing on effects, co-occurring conditions, clinical trials, biological mechanisms, diagnosis, treatment, prevalence, and quality of life. The Director of NIH will coordinate and prioritize non-duplicative research, consult stakeholders, and submit biennial reports to Congress. This aims to enhance understanding and management of Down syndrome, improve care, and address the specific needs of individuals with Down syndrome and their families.
DeOndra Dixon INCLUDE Project Act of 2025
This bill provides statutory authority for a program of the National Institutes of Health (NIH) that carries out research and training relating to Down syndrome, including with respect to co-occurring conditions and improving the quality of life of affected individuals. The NIH must implement the program in consultation with relevant stakeholders and avoid duplicating existing NIH Down syndrome research.
Biennially, the NIH must submit to Congress a report cataloging the research, including results that may be used in medical care or clinical research.