Bill Sponsor
House Bill 5178
119th Congress(2025-2026)
Sickle Cell Disease Comprehensive Care Act
Introduced
Introduced
Introduced in House on Sep 8, 2025
Overview
Text
Bill Intelligence

This bill aims to amend the Social Security Act to include individuals with sickle cell disease in Medicaid health home programs. It requires states to provide dental and vision services to those enrolled in these programs, irrespective of existing Medicaid requirements. States with sickle cell disease-focused State plan amendments must submit reports on the quality of healthcare, access to healthcare, and total healthcare expenditures for individuals with sickle cell disease. The bill also requires the Secretary to make best practices for these programs publicly available on the Centers for Medicare & Medicaid Services website.

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Sponsor
Introduced
Sep 8, 2025
Latest Action
Sep 8, 2025
Origin Chamber
House
Type
Bill
Bill
The primary form of legislative measure used to propose law. Depending on the chamber of origin, bills begin with a designation of either H.R. or S. Joint resolution is another form of legislative measure used to propose law.
Bill Number
5178
Congress
119
Policy Area
Health
Health
Primary focus of measure is science or practice of the diagnosis, treatment, and prevention of disease; health services administration and funding, including such programs as Medicare and Medicaid; health personnel and medical education; drug use and safety; health care coverage and insurance; health facilities. Measures concerning controlled substances and drug trafficking may fall under Crime and Law Enforcement policy area.
Sponsorship by Party
Republican
Florida
Democrat
California
Democrat
District of Columbia
Democrat
Louisiana
Democrat
Maryland
Democrat
Massachusetts
Democrat
Mississippi
Democrat
New Jersey
Democrat
New Jersey
Democrat
North Carolina
Republican
South Carolina
Democrat
U.S. Virgin Islands
Democrat
Washington
Democrat
Washington
Democrat
Wisconsin
House Votes (0)
Senate Votes (0)
No House votes have been held for this bill.
Summary

Sickle Cell Disease Comprehensive Care Act

This bill allows state Medicaid programs to establish health homes to provide coordinated care for individuals with sickle-cell disease. (Under current law, state Medicaid programs may establish health homes to provide coordinated care for individuals with specified chronic conditions.) States must ensure that such care includes dental and vision services.

The Centers for Medicare & Medicaid Services must issue best practices for states on how to design and implement such health homes.

Text (1)
September 8, 2025
Actions (2)
09/08/2025
Referred to the House Committee on Energy and Commerce.
09/08/2025
Introduced in House
Graphics
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H.R.5178 119 Sickle Cell Disease Comprehensive Care Act
Public Record
Record Updated
Apr 23, 2026 8:07:14 AM